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GENE THERAPY EDUCATION

Created a suite of educational materials for patients considering gene therapy as a treatment for sickle cell disease (SCD) to inform and empower patients of all ages and their caregivers.

PROJECT SPONSOR:
Cincinnati Children’s Hospital Medical Center

ROLE:
Fellow - Industrial Design Lead

TIMELINE:
Aug - Dec 2024

SKILLS:
User Interviews
Journey Mapping
Visualization
User Testing
Information Design




This work is confidential, however I am able to share hard copies in interviews.



BACKGROUND

There is an immediate need to create educational resources for patients and families to comprehend the gene therapy processes used in treating sickle cell disease.

PROCESS

  • Conducted primary and secondary research through interviews with sickle cell patients, their families, and providers.

  • Visualized the gene therapy process in the context of sickle cell disease.

  • Developed and prototyped a kit for gene therapy education for sickle cell warriors of any age, as well as their caregivers.

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